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EuroGenGuide website version 2 is online, now with updated information, automatic translation tool and extra links. Why not sign up for the EuroGenGuide newsletter!
The Genetic Interest Group was one of the winners of the GlaxoSmithKline Impact Award for 2008, in recognition of its work to improve health. Read about the awards here
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EuroGenGuide is a three-year project funded by the European Commission for Life Sciences and Biotechnology, as part of the Sixth Framework Programme for Research and Technological Development, and co-ordinated from London by the Genetic Interest Group.
The aim of EuroGenGuide is to provide accurate, high-quality information about genetic testing and research in Europe, for use by all those living in the continent to whom information about genetics is relevant, whether as a patient, a relative of a patient, or a health professional interested in providing genetic services to their patients. The core information on the site has been divided into a section for the public and patients, and a section for health professionals.
EuroGenGuide particularly wishes to be able to provide knowledge and information to those regions and countries in Europe where knowledge of genetics and available treatment is still limited. In raising the public visibility and awareness of genetic research and what it may be able to achieve in future, EuroGenGuide hopes to be able to contribute to maintaining the pace of this research and thus ensure that an increasing number of people affected by genetic disease can get the help and treatment they need, wherever in Europe they might be.
Beginning in January 2007, the EuroGenGuide project will last for three years, with the fully finished guide being launched officially across the continent at the end of 2009. At the time of writing (July 2008), the project has reached the halfway stage and the website has gone online for the first time.
The EuroGenGuide team is comprised of thirteen different member organisations from around Europe, from across the spectrum of genetics in healthcare. The participants were invited to take part in the project due to the specific areas of professional knowledge and knowledge that they can bring to EuroGenGuide, in order to create material relevant to as many different people as possible. Made up of a diverse mix of patient support groups and doctors from a range of different European countries, you can find out a little about everyone working to develop EuroGenGuide at the team page, here
