Maryze Schoneveld van der Linde

Maryze Schoneveld van der Linde, MA  was born in 1970 and lives in the Netherlands. She graduated at the University of Leiden, The Netherlands, in Cultural Anthropology in 1995. Since 1996 she has been working with migrant and refugee women from Turkey and the Middle East Region in empowerment related issues and activities.

She was born with a hereditary neuromuscular disorder called Pompe's disease or Glycogen Storage Disease type 2. The diagnosis was made at the age of 8th years.

She has been an active board member of the Dutch Association for Respiratory Support (VSCA, 1997 - 2006) and an active board member of the International Pompe Association (IPA, 1999 - 2006). Currently she has become advisor of the IPA. During all her activities she has been involved and still is involved in all kinds of issues related to diseases, medicine development and health related politics. She is also involved in issues related to genetics and considers it very important for patients and society.

In 2007 she started a consultancy in health and care called Patient Centered Solutions. With her consultancy she provides clients with experienced based expertise, knowledge and practical insights from a patient's perspective regarding issues related to health and care.

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Website: www.pacesworld.com