Ysbrand Poortman

Ysbrand Poortman is a biologist by education, and father of a daughter born with a serious genetic condition. He founded several patient & parent alliances at both national and international levels. He co-founded the European Platform Patient Organizations, Science and Industry and served as a chairman from 2001 - 2006. All organisations have a focus on improving healthcare and supporting research into causes, prevention and treatment of genetic and/or serious disease.

Ysbrand is vice president of the World Alliance of Organizations for the Prevention and Treatment of Genetic and Congenital Conditions (WAO, The Hague)  and Secretary General  of the International Genetic Alliance of Parent & Patient Organisations (IGA, Washington). He is also a member of the college of chairs of  the World Life Sciences' Forum, BioVision and a member of various advisory boards (e.g. Dutch National Health Council), academic councils, curatoria and expert committees. 

Ysbrand has also authored a large number of publications such as chapters in books, articles, teaching packages and information materials on genetics.

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Website: www.wandaworld.org