Links
Here you can find links to a wide range of relevant information about genetic testing and research around Europe.
On this page there are links to European biobanks, national genetics networks, European data privacy laws, patient organisations for different diseases and many other useful websites, just click on the link descriptions to take you straight there.
If there is anything that you are looking for and cannot find here, you can email the EuroGenGuide team here
Index
- Genetic Interest Group: The UK alliance of patient organisations for all those affected by genetic disorders, representing over 130 different patient groups
- VSOP: The Dutch genetic alliance, representing all those in the Netherlands affected by genetic disorders
- ESHG: The website for the European Society of Human Genetics
- EGAN: The website for the European Genetic Alliances Network
- EuroGenTest: Network for the harmonisation of standards and practice in genetic tetsing across Europe
- Biobanks EU: Information about different biobanking schemes across the European Union, and about the aims and structure of genetic research throughout the region
- UK Biobank: Website for the national UK Biobank, with information about DNA research in the UK, and how you can donate samples and take part
- UK Genetic Testing Network: Comprehensive information about genetic testing across Britain
- UK Genetics Centres: Directory of genetics units located around the UK
- WANDA: The World Alliance of NeuroMuscular Diseases Association, providing information, advice and support for all those affected worldwide by neuromuscular diseases
- CEEGN: Website for the Central and Eastern European Genetics Network, representing all those affected by genetic and congenital conditions in the countries of Central and Eastern Europe
- European Union data privacy regulations: Comprehensive, European Union produced information about data privacy laws and regulations in different countries throughout the region
- Nature Scitable: A comprehensive, collaborative learning space for science undergraduates and all those interested in genetics education
- Patient Opinion: Where patients can share their experiences of medical and health care received throughout the UK
- Heart EU: Website for the European Cholesterol Patient Foundation, providing advice and support for all those affected by inherited cardiovascular disease
- GAMIAN EU: European website of the Global Alliance of Mental Illness Advocacy Networks, providing information, advice, and support for all those across Europe affected by mental illness
- Bionet: Here you can find information about laws governing genetic testing in minors, and ownership of personal data, in different European countries
- Alzheimer Europe: Organisation working towards improving care and treatment for all those affected by Alzheimer's throughout Europe
- Rare Disorders Belgium: Website for the alliance of those affected by rare genetic disorders in the French and German speaking regions of Belgium
- Fighting Blindness (Ireland): Irish charity funding research into blindness, and providing counselling for those affected
- European Parkinson's Disease Association: Providing support, advice and information to all those in Europe affected by Parkinson's Disease
- Huntingdon's Disease Assocation: Providing information, support, and advice for all those affected by Huntingdon's Disease
- FAP Gene: Providing information, advice and support for all those in the UK affected by Familial Adenomatous Polyposis, or Gardner's Syndrome
- Angioma Alliance: Providing information, advice and support for all those in the UK affected by Cavernous Angioma
- P3G Observatory: A not-for-profit international consortium to promote collaboration between researchers in the field of population genomics, aiming also to increase the public understanding of genetics throughout the world
- The London Centre for Refractive Surgery: The longest established refractive surgery clinic in the UK. Experts in treating inherited Keratoconus
- Keratoconus Global Support: Advice, support and useful links for all those affected by inherited keratoconus
- IPBio Network: International forum for those with research interests in the area of intellectual property in the biosciences
- GenoMEL Project: European Union-funded skin cancer genetics project, providing information and advice to patients
- Research Insight: Excellent market research consultancy company, based in the UK with a wealth of experience carrying out market research in the healthcare field
