Latest News

05.01.2009

EuroGenGuide website version 2 is online, now with updated information, automatic translation tool and extra links. Why not sign up for the EuroGenGuide newsletter!

21.07.2008

The Genetic Interest Group was one of the winners of the GlaxoSmithKline Impact Award for 2008, in recognition of its work to improve health. Read about the awards here  

Featured Articles

Genetic data banned for access by insurers in UK

The British government extends the moratorium on the results of genetic tests being made available to insurers to 2014. Read the full report at the BBC News site, here

BioNews

Why not check out BioNews, the free weekly digest of news stories in the field of assisted reproduction and human genetics

Public and patient information about genetic testing, counselling and research in Europe

YOU MAY FIND THE INFORMATION IN THESE PAGES USEFUL IF YOU, A FAMILY MEMBER, OR SOMEBODY WHO YOU CARE FOR:

• Are considering taking a test to predict or diagnose a genetic condition.
• Have received the results of a test confirming a prediction or a diagnosis of a genetic condition, and are deciding what to do next.
• Are considering allowing biological material to be stored in a DNA bank and used in a genetic research program.

If any of these situations are similar to yours then please read on. The information below has been divided into sections for separate topics, with relevant material for different groups and communities. Have a look at the bottom of this page to see which topics apply to you and click on the link to take you straight there.

General information about genetic services around Europe, and links to national genetics networks can be found at the website for the European Society of Human Genetics, here

Similarly, the EuroGenTest project has devised a series of leaflets in a range of European languages, and which explain several key aspects of genetics and testing. These can be found here

Topic Areas

• Informed consent - how to make the right choices about your own treatment
• DNA banking / biobanking - how biological samples donated by you are stored and used in genetic research
• Gender and family - the different issues relevant to men, women and families when taking genetic tests
• Cultural and biological diversity - concerns faced by groups from different social and cultural backgrounds
• Access and benefit sharing - why it is worthwhile to take part in genetic research

Whenever you want to navigate back to this main menu again, just click the 'public information' icon on the top bar